We are near the end our first month as gluten free. It hasn't been that bad. I haven't felt deprived at all, but I think the kids have to some degree. Just because they go to friend's houses or church activities and there's all the stuff they can't eat.
I have seen major improvements in our health in just one month. The babies are talking and growing. Ammon seems as big as a three year old now, despite being almost 2 and a half. He is talking in sentences, asking questions, and getting some attitude. Joshua is saying words I had no idea he knew. He started potty training and that is still a progress in the works, but he's now able to notice when he has to go. Hannah's moods have improved and she is willing to help out with a lot of the chores. She just seems happier. Jesse just states that he is hungry all the time, but he has gained 7 pounds in the last month and I think he is also going through a growth spurt.
I left Isaac and Simeon to update last. I had thought with this diet, because I seemed to be feeling better and so have most of the kids, that it would magically make the Autism disappear. It wasn't until this week that Isaac woke up one morning and told me he feels good. I don't remember when the last time Isaac had told me that. Simeon was doing really good with a lot of things, like his speech and some eye contact. I had heard some stories about a gluten free/casein free diet, along with intense therapy, made the autism disappear. I just didn't know what to expect from the kids going gluten free.
Yesterday, in a moment of insanity, I decided to take the kids to the zoo. The last time we had gone was the day I got the call that I had Celiac disease. I remember having the stomach pain that was getting worse the longer we spent at the zoo. Yesterday was amazingly different, for me anyway. I had energy, I had no pain, I could pull the little boys in a wagon through the entire zoo and I didn't feel like I was going to pass out by the time we got done.
What was alarmingly the same was Isaac and Simeon. Isaac hadn't gotten his medication that morning in all the commotion getting ready for the trip. He was screechy, making weird noises, and had spastic arm movements. His coordination was off, so when I ask him to help push the wagon up a few hills he looked like he was pushing but instead he was just hanging onto the back while I dragged the wagon and him up the hill. With this awareness of him not being on his medications and that we had been on the diet for a month, while he was in great mood, there was the autism still.
Simeon's only goal when he goes to the zoo is to see the penguins. The penguins should be the only animals we see when we go to the zoo in his opinion. They are in the center of the zoo, so on the way there we stop to see the other animals, like elephants, rhinos, monkeys and small animals. At the elephants he had a complete meltdown. Nothing like seeing a 6 year old screaming at all the other zoo patrons that he needs to see the penguins. A couple times I knelt in front of him, tried to do some counter pressure things on him to calm him down but it wasn't working. He wouldn't look at me, he was fidgety and could only repeat "I want to see the peeeennngggguiiiinnsss!!!!!!!" Eventually we got to them after taking a few wrong turns which only agitated him more. When we got there you could hear Simeon over the crowd of people in there as he talked to the penguins. "Hi penguins! Do you like donuts? I have a flag! I pledge allegiance to the flag of the United States of America. You're going swimming? I love swimming. Penguins love fish!" This in itself draws attention because he's so enthusiastic and my children have been blessed with really loud voices they inherited from their father. We are required to stay at the penguin exhibit for no less than 15 minutes. Simeon would be there all day with the penguins if he could. While I relayed all this to Curtis that afternoon he asked if Simeon had taken any of the 4 stuffed penguins he has. He hadn't. In the past the penguins have come along for field trips he carries in his backpack. Lesson learned there.
And the other lesson I learned: The gluten free diet is not going to cure everything. It will make us better to some degree, but in the end, Isaac will still have Aspergers and Simeon will still have Autism. I'm not upset by this, just maybe I had my expectations set too high.
Over all though, we have been doing really good. I am so relieved to have a diagnosis. Cooking has been an adventure in finding things to replace what we used to love. I did convert our favorite chocolate chip recipe and so far have made some muffins, corn bread and pancakes that were wonderful from scratch!!
I will try to get some posts on here for recipes I have tried. I'm still trying to remember to take pictures of the bakery products we have tried, but we are to excited to eat them instead of taking time to take pictures.
Here are some of the things we have come up with for quick meals.
Rice cakes with peanut butter and jelly
Corn tortilla shells with refried beans and cheese
Muffins
Eggs
Baked Potatoes (I found the big ones at Costco, wrapped them in foil and put them in the oven on 300 for three hours while we were gone for an appointment. They were done and wonderful!)
Spaghetti with corn noodles
Pepperoni and cheese sticks (more of a snack)
Steelhead trout and salad
I'll keep posting things as I find them.