I realized last week how lax I have been in writing here. I plead with anyone that has any experience in the mental illness realm to please chime in with advice. I'm still floundering a bit over here.
The short story is we took a trip out to Monroe Meyer Institute in Omaha, NE for them to evaluate Isaac and Simeon and to get a final diagnosis. I had so many people speculate what Isaac or Simeon may have. What it came down to was mild autism for Simeon and ADHD, Asperger Syndrome and possible Schizophrenia for Isaac. The testing is not done as we go out to Kearney next week to get MRI's done to eliminate seizures or tumors. While none of this came as a surprise, there were some things in there I didn't want to admit to myself.
Schizophrenia scares me. It scares me even more to hear all that Isaac has to say about his condition. This had come up about 6 years ago with another counselor, but I dismissed it because of Isaac's age. He's 11 now and quite able to tell me about what he sees. He has two sets of people: the Ladies, Ms. Bonnet and Ms. Moss are nice and tell Isaac he is good, handsome, and smart. They comfort him when he is sad. The other ones are Cowboys. These guys jump out and scare him, hide under the bed, move in the shadows and tell Isaac to do things like choke, hit and kick people. As he's gotten older he's gotten better control. To be honest, I feel like a stranger family moved in and I'm just now learning they've been living in the basement all along. When Isaac seems distracted, it is because he is listening to the voices. When he is standing to the side of the room, tapping his hands, his eyes trying to look at everything at once, he's arguing with the voices. The Cowboys are also why his anxiety is through the roof, why he never wants to be left alone, why he never wants to be in a room by himself. We are currently working with medications to get some balance back to him, but medications don't always last 24 hours and we have to have plans for when it wears off. Isaac is under supervision most of the time and this is exhausting but getting better as he gets older.
Heavenly Father certainly knows our prayers well before we ask them. By Thanksgiving I knew Isaac was not doing well at all. School was hard, he was begging to come back home, you could see the anxiety rising in him. His medications would wear off about 4 in the afternoon, just in time for him to ride the bus home and sometimes walk. It became apparent quickly we couldn't let Isaac walk home with his brothers and sister because he caused fights, left them behind, took different routes or screamed all the way home. In desperate prayer one night I felt he needed to come back out of school. If I needed a reminder of why I started homeschooling, I had my answer. All the 'symptoms' of why I started homeschooling were still there, but a lot of them had lessened with homeschooling...apparently enough that I forgot about them. I started making plans to remove just Isaac from school, hoping this would reset the balance he needed to function, hoping I could get some relief from the constant upset in my home.
The school has not taken kindly to this. They are not equipped to help a child with Schizophrenia, and while they never saw the behaviors I did, they would not help him with the problems I listed until they saw them displayed. So, no Occupational Therapy, no Behavior Intervention or therapy. They helped him with academics. When I went to them for help, they suggested I get Isaac institutionalized and then got upset when we chose not to go that route. Within a week of removing Isaac from school, a lot of the behaviors lessened. His doctors adjusted some medications and that helped as well. By Christmas, we were all starting to breath easily. One of the more disturbing situations I witnessed about Isaac was on his last day we went in to his class to get the few things left out of his desk. I thought he could have a chance to say good bye to some friends. He wouldn't make eye contact with anyone, he wouldn't speak to anyone, and he was agitated. The other kids tried to say good bye, ask him if he was moving, that sort of thing, but his eyes were all over the place he never seemed to make the connection that they were talking to him. He hovered under my arm, too insecure to wander off on his own.
I'm not saying I'm anti public school at this point, but there have been more cons to the kids being in school than being homeschooled. I learned very quickly I lost a lot of patience I had while homeschooling. I missed my kids, I missed having a purpose (i.e. lesson planning, scheduling, teaching). It is different to just homeschool one child versus 4-6 of them at the same time. With the advice of a couple of doctors we felt it would be better to get Isaac stable and let the other kids finish out the school year. We have already decided we will all homeschool next year. It will be nice to be altogether again and I've learned a huge lesson in all this. Mothering instincts are real and usually pretty accurate. YOU know your child better than anyone.
On top of all this stress, we've had illnesses galore. H1N1 flu, pneumonia, colds, strep, ear infections, hand foot and mouth disease, and I have an ulcer. Then this month the van breaks down (our only vehicle), but God is mindful and we were able to get a second opinion on it and it IS just fine. At least for now. Yeah, it could stand a few repairs, but not no 1700.00 we were originally quoted. Curtis continues to look for a better paying job, but it is not easy going but we are grateful we DO have a job.
In a month, my baby will be two. By this time we have usually had another baby or be just about to have another baby. I feel a little lost on that part too. I feel like I'm entering a new stage of life but I wasn't quite ready for the last part of be over yet. I love the babies, I crave the babies, and they sadly may not be coming anymore. I'm trying to resign myself to being happy with the six we have, but I felt so sure we had at least one more coming to us.
So, this is the end of my post on our struggles. I wish there was someway to lace some humor into it, but there seems to be a short supply of that when dealing with mental illness. Once again, I would love to hear from any homeschoolers who have this affliction with their children.
To a better year!!!